I Am Not My Treatment: A Disease Overshadowed by Glutenspeak

May is Celiac Awareness Month. My guess is that it’s mostly celiacs who are aware of this; it’s celiacs who are more aware of the facts about the disease, the stats, the treatment.

Celiac disease websites, message boards, and blogs are probably visited mainly by celiacs, or by those suspecting that they have celiac or non-celiac gluten sensitivity.

But sometimes it’s those who are uninterested, unaware, undiagnosed who need the information the most. It’s a task made more difficult, ironically, by the popularity (or infamy) of the disease’s treatment.

Gluten-free. Depending on whom you talk to, it’s a diet, a treatment, a lifestyle, or a fad. And it’s ubiquitous. It’s overused. It’s played out. It’s diluted.

The popularity of the gluten-free diet has both helped and hurt those with celiac disease. It has brought more options to the shelves of grocery stores. And it has also brought criticism, mockery, and dismissiveness from those who don’t even realize that they may be sneering their way to an early grave.

The gluten-free diet might never be taken seriously because it has moved into the realm of “fad.” Okay, fine. However, one downside of all the hubbub about the treatment is that the disease a gluten-free diet treats has been overshadowed. It’s when the disease isn’t taken seriously that the problems start to arise.

Celiac disease is not a fad (despite celiacs maybe wishing it would just go away already). It’s an autoimmune disorder, and it’s genetic. Most celiacs already know that, and they might also know how hard it can be to convince family members to get screened for it too. Maybe because the people they are trying to convince are sick of hearing about gluten. Or maybe because they are tired of hearing that they should get screened just because someone else tested positive. Or maybe they’d rather not be diagnosed because they don’t want to give up gluten.

No celiac wants their family members to have celiac disease. But they don’t want them to risk feeling sick, being malnourished, or continuing to damage their insides either. Screening for celiac is not about living gluten-free. It’s about screening for a disease for which, luckily, there is a treatment.

According to Dr. Daniel Leffler, director of research for the Celiac Center at Beth Israel Deaconess Medical Center in Boston and NFCA Scientific/Medical Advisory Council Member, celiac disease should be a part of family medical history, and getting screened should be the default for those who have celiac in their family.

But what should be is not necessarily what is, and the National Foundation for Celiac Awareness (NFCA) has launched a campaign that aims to bring us one step closer to this ideal. “Seriously, Celiac” urges diagnosed celiacs to talk to their families about getting screened. In an interview with Alice Bast, president and CEO of the NFCA, she mentioned that the key is keeping the focus on the disease, not the lifestyle.

For example, say you have been diagnosed with celiac disease and want to convince your family members to get screened. Rather than saying something along the lines of, “Maybe you should try going gluten-free,” you might instead explain that celiac is genetic, and all you’re asking for is a simple blood test. It’s a small ask that might lead to a lifesaving diagnosis — and can save years of distress.

Jillian Lagasse, co-author of The Gluten Free Table and The Lagasse Girls’ Big Flavor Bold Taste and No Gluten, recalls feeling panic and excitement when she was diagnosed with celiac disease over 10 years ago. Panic because she had been diagnosed with a life-changing disease, and excitement because, well, after suffering throughout her entire life and being misdiagnosed several times, she finally had a diagnosis.

Okay. This all might be sounding very self-serious. Can’t I lighten up? Crack a joke? Here’s the problem with that. There are people who make jokes about being gluten-free, and it’s not always understood that those jokes are generally aimed at the absurdity of the fad, not the treatment. There is a difference between the gluten-free fad and the gluten-free treatment, but it all gets lumped together as “gluten-free.” Then more jokes are made, and the race to see who can come the closest to crossing the line begins.

But because the gluten-free treatment/fad line is so non-distinct, sometimes jokes do cross into treatment territory, which is on the side of disease. That’s when people stop taking seriously what needs to be taken seriously, which can be harmful. It’s rare to hear a joke about other kinds of diseases. Or to see so much skepticism and snarkiness surrounding them. As much as celiacs might have a sense of humor right along with everyone else about the gluten-free fad, it stops being funny when a celiac approaches his or her family about getting screened and is met with an eye roll.

Everyone will have a different reaction to being asked to get a blood test for celiac disease. Maybe it won’t be an eye roll, but reluctance. Or denial. Or fear. It might require patience, or it might require no convincing at all. Once we start slicing off the breadth of misconceptions and associations with the barnacle-like fad of ill repute, we can really start saving lives.

Copyright © 2015 Celia Kaye
All Rights Reserved

Celia Kaye is the name under which writer-filmmaker Kaitlin Puccio pens articles about her experience with gluten sensitivity. Kaitlin has written a forthcoming children’s book on celiac and gluten sensitivity for the Celia Kaye lifestyle brand, and has been a contributor to MindBodyGreen. Follow her on Twitter, like her on Facebook, and visit her at celiakaye.com.

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Dispatch: Beauty Wellness Wisdom — a Recipe for Pleasure

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I’m Miriam Ava, founder of ColorsofGratitude.com and ambassador of good taste. I love sharing messages that matter, one Dispatch at a time. Housekeeping: I’m not paid to report on the event below; I do it because it brings me pleasure and I want the world to learn about these great ideas. Photo credit: ABC Home except for the top one.

Once you walk through the grand, wooden portal you enter into the wonderland that’s a sacred space for the senses. Ancient art, modern design, jewels for body, skin, and belly line the way to garments of grace and symbols of love. Solid stairs — steps toward beauty, wellness, and wisdom — are drenched in the embrace of soft rose fairy lights. You’re entering the home base of gratitude.

ABC Home’s annual flagship event Beauty Wellness Wisdom is an invitation to step into pleasure. Designed as a day-long retreat to recalibrate, explore, and inspire, BWW provides fertile ground to plant seeds of intention. And while one could be rigid and find the beauty part in the according appointments, wellness in the opening and closing rituals, and wisdom in the inspiring morning talks, the genius of flexibility extends these three epicenters into a triangle of treasures. Beauty is inextricably linked to wellness and wisdom; wellness springs forth from beauty and wisdom; and wisdom is rooted in beauty and wellness. Take the triangle of treasures as your compass to plug into the grid of joyful living.

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Supporting the allowing in of novel experiences and the releasing of any thoughts of lack, the day kicked off with a true highlight while continuing to impress as it progressed. After Aya & Tyler had set the mood with their dreamy music and Sarah Platt-Finger held space for a moment of stillness, the featured speaker stepped on stage. Dr. Mario Martinez, clinical neuropsychologist, founder of the Biocognitive Science Institute, and author of the #1 bestselling The MindBody Code, shared his cutting-edge wisdom on how cultural beliefs impact health, longevity, and success.

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Did you know that we co-author each other’s biology by the cultural language we use to communicate? Did you know that “the immune system confirms the reality that you live,” as Dr. Martinez put it? For easy reference, here are 5 key points to launch you into your best life (Gratitude Speaks interview w/ the Indiana Jones of healthy centenarians coming soon):

Archetypal wounds (abandonment, shame, betrayal) and the associated healing fields (loyalty, honor, commitment) that can be engaged to resolve the wound.
Cultural portals: We’re constantly fed how we’re supposed to behave at a certain age. The cultural chorus of misery goes something like this: “No kids at 35? You better freeze your eggs.” “It’s all downhill from 50 onward. And dress appropriately, you’re not a young chick anymore.” “You’re 65, go retire. We don’t really need you anymore.” Sound any of this familiar? You bet. And it’s time to change that. In order to thrive, it’s vital to opt out of the man-made cultural portals. My two cents: Once you stop perpetuating those portals, you’ll birth a new archetype, homo independus happiensis.
Create sub-cultures of wellness: We’re herd creatures and need to support each other. If the folks in your physical environment are vibing to the ‘ain’t it awful’ tune, seek support through books, online communities, conferences, retreats, social media. Get in touch with like-minded people.
Portals of synchronicity: Look for out-of-order events. These provide openings to follow new paths.
– If you have to have a marker, take this one: Middle age starts at 90.

The morning concluded with lively panel discussions by captivating speakers such as Gabby Bernstein, Tata Harper, Rose-Marie Swift, Candice Kumai, Stephanie Wakczak, and Hannah Bronfman who shared their stories and expertise on entrepreneurship, natural beauty, fitness, health, and divine flow. Since we are the world, we took the time to extend grace and cash to bring relief to Nepal via the Nepal Earthquake Relief Fund.

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The afternoon filled the space with a rush of fresh energy as guests dove into their beautifully busy event appointments. Anything and everything, from culinary to aesthetic to cosmic to biocognitive, was taken care of: skin care, hair care, flower essences, chocolate, bouquets, astrology, MindBody Q&A. The ever-radiant Tata Harper taught several hands-on master classes; both Rose-Marie Swift of RMS Beauty and Dr. Pratima Raichur of Pratima skin care offered one-on-one beauty consultations; luminous Tracie Martyn provided mini facials; Mordechai Alvow of Yarok hair gave mini styling sessions; Lotus Wei celebrated flower readings; the gorgeous Demitra Vassiliadis of Heaven to Earth Astrology offered fascinating snapshots of the state of the stars during one’s birth; ZenBunni shared chocolate love; florists taught guests the art of the ABC bouquet; Dr. Martinez held space for an intimate, revelatory Q&A session that dove deep into the biocognitive process and offered practical tools. It was a full day in full swing with magic.

The retreat closed with a beautiful meditation and intention to carry forward the beauty, wellness, and wisdom generated during those precious hours. Mark your calendars for next year’s event; it’ll be well worth your time. Meanwhile, embody your pleasure.

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Science Confirms Your Company Should Pay You To Stop Smoking

Is money even more enticing to smokers than cigarettes?

This was the question at the heart of a new study from the University of Pennsylvania, published this week in the New England Journal of Medicine. In an effort to evaluate financial-incentive smoking-cessation programs, researchers looked at four different models of such initiatives in a clinical trial of more than 2,500 randomly assigned CVS Caremark employees and their relatives and friends.

One option allowed smokers to deposit, or “bet,” $150 of their own money — and only recoup it, along with a bonus, if they changed their behavior — while another simply paid smokers who successfully quit. Another system put smokers into groups, and either offered higher rewards if more members of the group quit or gave successful quitters the deposits of group members who didn’t kick their habit. The reward across all four programs was capped at $800. A separate control group received “usual care,” which included counseling, information about the dangers of smoking and smoking cessation aids like nicotine patches.

People were much more likely to agree to take part in the reward-based programs — 90 percent of participants who were asked to enroll in the plan said yes — than the deposit-based ones, which had a 13.7 percent enrollment rate. And though participants were less likely to accept the deposit-based program, it yielded more success stories: 52.3 percent of participants who bet on themselves successfully abstained from smoking after six months, while only 17.1 percent of people in the reward-based program did.

Group-oriented rewards programs, the study reported, were not significantly more effective than individual-oriented ones.

Overall, all the financial incentive programs were more effective than usual care — with a 15 to 16 percent sustained abstinence rate at six months, compared to 6 percent — which, researchers argue, offers an important message for employers to consider.

“Because employing a smoker is estimated to cost $5,816 more each year than employing a nonsmoker, even an $800 payment borne entirely by employers and paid only to those who quit would be highly cost-saving,” the study says.

As The New York Times notes, the study was the largest to date that has considered financial-incentive smoking-cessation programs. CVS intends to use the research findings to design a plan to get their own employees to quit smoking.

Still, there are caveats — and challenges for any business hoping to adopt a smoking-cessation program — associated with this promising research. The most effective program in the study was not particularly popular, after all. As Cass R. Sunstein, founder and director of Harvard University’s Program on Behavioral Economics and Public Policy, wrote in a NEJM editorial, the test will be making deposit programs more attractive to smokers who are attempting to quit.

“If that challenge cannot be met, reward programs are much better bets,” Sunstein wrote.

Cigarette smoking among U.S. adults has hit a record low — as of 2013, about 17.8 percent of American adults smoke cigarettes, compared to 20.9 percent in 2005 and 42.4 percent in 1965.

Still, the Centers for Disease Control and Prevention warned last year that the anti-smoking push is falling short of the federal goal of reaching a smoking rate of 12 percent by 2020 and the National Institutes of Health reports that smoking is still responsible for about 443,000 deaths each year.

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Moving Beyond Problem Solving: A Potential-Based Approach

You know how you can get stuck when you try to solve a problem?

In this article I am sharing a different approach to problem solving – one that can potentially rock your world.

How we currently deal with problems

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Typically, when we are faced with a challenge, we pick one of these methods to deal with it:

1) We try to talk, think or reason our way through the problem, but instead of moving towards a solution, we go around in circles: we explain how it got to be this way, we contemplate the dishonesty of the situation and who to blame for it, and onwards we go. Never really reaching a solution, basically stuck in the drama of it all.

2) We focus everything, and I mean EVERYTHING, on finding a solution, any solution, as quickly as possible. Contrary to the 1st approach, we don’t take any time to feel the pain or analyse the situation. As a former manager, I remember this as the better option: not just talking about what went wrong, no pointing fingers or blaming, but straight to solving this hick-up.
And when it’s done: on to the next.

These approaches lead to solutions that suffice at best, but are probably uninventive and limited.

Problem solving 2.0

Studying with Alan Seale, the founder of the Center for Transformational Presence, I learned a completely different approach to handling challenges.
It takes problem ‘solving’ to a whole new level.

Instead of going deep into the Drama or moving straight into Solutions, we ask ourselves two questions when we find we’re challenged:

1) How do I choose to be in relationship to this problem?

2) What opportunity is presenting itself through my problem?

How do I choose to be?

This is such an empowering question! It provides you with the opportunity to step away from your default reactions to stress and insecurity.

Let me give you a personal example: When my son isn’t happy about the food on his plate, he has the annoying habit of making that very, very clear by screaming about it. This is a big trigger to me: the noise and the pointlessness of it sets me off quickly.

By asking myself ‘How do I choose to be in relation to this situation?’, I relieve myself of my role as a victim of the situation and I allow for several things to happen:

1) I stop myself from reacting immediately;
2) I can take a deep breath (or two);
3) I take a look at the situation as if I wasn’t part of it, but merely a spectator;
4) that different perspective offers me information about the needs of my son, myself and the rest of our family.

These four build up to a conclusion of how I want to be. And believe me, that is always different then my initial, default reaction would have been.

What is the opportunity here?

There’re two things we need to understand about problems.

1) They always, always come with at least one solution.
2) They don’t come out of nowhere, there is always a lesson to be learned, a message to be heard or an opportunity presented.

Especially that last one might be difficult to acknowledge, because clearly problems aren’t any fun. So what would be positive about it? I know. And I am not saying that things cannot suck. But I am saying that ‘things’ arises to bring you something, namely lessons, messages and opportunities.

Given that fact, it is immensely powerful to be able to ask ‘What is the opportunity here?’ or ‘What wants to happen here?’ when challenges come up. The reason for that simply being that it completely shifts your perspective from a helpless spectator to being back in power: co-creating a new reality.

In the case of my son’s food tantrums, there are many things that might be an opportunity for me. I’m probably learning to be calm even in the midst of storm, I may be learning to focus on love even when things get rough and I can think of plenty more. What wants to happen, is that I grow into bringing my wisdom practises to our kitchen table (instead of leaving them on my meditation pillow in front of my little house altar).

Moving beyond problem solving, into co-creating

To me, these two questions offer a completely new perspective on problem solving. No longer am I stuck in reinforcing what isn’t working because I simply cannot see beyond the situation I am in. Asking these two questions gives me the freedom to work with what is wanting to happing, instead of spending my energy on either pushing or pulling.

So now I am curious! Do you see the opportunities in this approach to improve your problem solving?
And in what challenging situation would you want to give Alan’s method a try.
Please add your opinion and experiences to the discussion in the comment area below!

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How to Have a Good Knee Replacement

If you are due to have total knee replacement surgery, here are some tips on how to help control your own outcome.

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Artificial joint replacement is the last resort for most people when their knees have worn out. Fortunately, the procedure itself has become much less painful, far quicker, and more accurate; and it has a faster recovery time than ever before, if the best techniques are used. [5,7]

However, there are several key steps you can take before, during and after the surgery to help control your own outcome.

BEFORE

  • Exhaust all the alternatives to total knee replacement first. Depending on your exam, x-rays and MRI, these may include a great physical therapy with gait, balance and muscle training; biologic joint replacement procedures with meniscus replacement and articular cartilage repair, [6] if there is still joint space to work with; or partial joint replacement, if only one or two portions of the knee are worn out. Partial knee replacements work much better than in the past due to computer and robotic insertion techniques that have taken the inaccuracy out of the procedure. [1,3]
  • Prepare mentally. If you need a total knee replacement, look at the procedure as an opportunity to become fitter, faster and stronger than you have been in years. This is not usually possible when you are having pain, but it is a great goal to have once the knee pain is gone. Looking forward to the “new you” makes the experience much less worrisome and turns it into a positive event in your life.
  • Line up a physical therapist (PT), a trainer, a massage therapist and a nutritionist. Yes, all of them if possible. All people with significant knee arthritis have walked for years with a limp, have decreased range of motion in their knee and often have compensated with abnormal gaits, decreased back and hip motion. [2] Focus your pre-surgery efforts on increasing range of motion, developing exercise routines focused on trunk and core strengthening.
  • See a nutritionist to help ensure that your dietary intake of protein is sufficient to respond to the stress of surgery. There is solid data that a low albumin level (protein level in the blood) correlates with increased infection at surgery. [4] Protein matters. Optimizing your weight before and after surgery helps you achieve the goals of being fitter, faster and stronger and preserve your new joint.
  • The night before your procedure, go see a movie or watch a comedy. Relax, laugh and sleep well.

DURING

  • The day of surgery, smile. Having a confident calm positive attitude affects you and your surgical team. Upbeat comments translate into happy outcomes. The advice of my surgical assistant, Ann Walgenbach, RN is to just “Let it go” like the song. Be confident that you are in safe hands, you’re going to have a really good nap and in a few minutes, you’ll have a new knee.
  • If you are anxious, consider a guided meditation; listen to music (some surgery centers will allow you to listen in the operating room)
  • If you are particularly anxious, talk to your surgical team about whether you can take medication such as Valium in the morning, with a sip of water.

AFTER

  • Set aside time to focus on physical therapy the day after surgery and everyday. A great PT will help work on the entire body, restoring each body part to work together. Some PTs will focus on training and fitness but others may not have the time or insurance permission to do so. Take enough time off work to get into the PT clinic as often as possible in the first six weeks. While some surgeons don’t believe PT helps, we are adamantly in the opposite camp.
  • Consider having a fitness trainer at a gym or have one come to your home. It’s often less expensive and feels less like medical treatment. It is most important to see yourself as an athlete in training and not a patient in rehab. Focus on building muscle strength in your upper body, trunk and core as well as the lower extremities. Bike and pool exercises cannot be overdone.
  • Book regular massages. A massage therapist can often augment the work the PT does and keep your tissues flexible while your joint heals and your body retrains. Treat yourself as any pro athlete would, use all the tools of the fitness trade.

If you are thinking that only rich people or privately insured can follow this advice, think again. Physical therapy is usually covered at least for a few sessions. Gym trainers in-group sessions are usually under 20 dollars an hour. Self massage works too. Nutrition is often common sense with a new focus on increasing protein and water intake, decreasing carbohydrates, and exercising more than you eat.

Whether your sport is skiing or simply walking in the mall, our goal is to help you do these actively and without pain, to be better than you have been in years and then dropping dead at age 100 while enjoying your sport. To do that, seeing yourself as an athlete in training and treating yourself as the pros do is the trick.

Sources

1. Jung KA, Kim SJ, Lee SC, Hwang SH, Ahn NK: Accuracy of implantation during computer-assisted minimally invasive Oxford unicompartmental knee arthroplasty. A comparison with a conventional instrumented technique. Knee 2009

2. Liu, Y. H., Wang, T. M., Wei, I. P., Lu, T. W., Hong, S. W., & Kuo, C. C. Effects of bilateral medial knee osteoarthritis on intra-and inter-limb contributions to body support during gait. Journal of biomechanics, 2014;47(2), 445-450.

3. Manzotti A, Cerveri P, Pullen C, Confalonieri N. Computer-assisted unicompartmental knee arthroplasty using dedicated software versus a conventional technique. International Orthopaedics. 2014;38(2):457-463. doi:10.1007/s00264-013-2215-8.

4. Palma, S., Cosano, A., Mariscal, M., Martínez-Gallego, G., Medina-Cuadros, M. and Delgado-Rodríguez, M. Cholesterol and serum albumin as risk factors for death in patients undergoing general surgery. Br J Surg, 2007;94: 369-375. doi: 10.1002/bjs.5626

5. Ranawat CS. History of total knee replacement. J South Orthop Assoc 2002;11:218-226.

6. Uth K, Trifonov D. Stem cell application for osteoarthritis in the knee joint: A minireview. World Journal of Stem Cells. 2014;6(5):629-636. doi:10.4252/wjsc.v6.i5.629.

7. Williams D, Garbuz D, Masri B. Total knee arthroplasty: Techniques and results. BC Medical Journal. 2010;52(9):447-54.

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We Can Be Better Than the Audacity of Small Hopes

The United States is suffering through the audacity of small hopes. In the shadow of the Great Recession and after several decades of increasing wealth disparity in the United States, the politically and financially powerful have the audacity to call upon the nation to accept small dreams. Nowhere is this more evident than in the pathetically small hope that consequential testing and competition — among parents for entry into charter schools, among schools for students, and among teachers for pay increases — can lead to substantial education improvement and be a solution to poverty.

There were times when our dreams were big. They can be again. The times demand it. A look back at what values and actions have broadened access to a decent life for all can illuminate a path toward greater equity in the future.

Images of workers on breadlines in the 1930s and of fire-hosed civil rights demonstrators in the 1960s catalyzed moral outrage and direct action leading to big dreams and substantive progress toward equality and equity for all Americans.

The popular depression-era song Brother Can You Spare a Dime struck a responsive cord as it called out the moral incongruity of “dreamers”-workers and soldiers- needing to beg in order to survive.

They used to tell me I was building a dream… Why should I be standing in line just waiting for bread?

Current political rhetoric still harkens to the American dream, but with growing inequality and stagnant wages, the words to Brother Can You Spare a Dime remain depressingly resonant.

To be clear, it was not the leadership, noblesse oblige or largesse of the powerful that led to improvement in people’s lives in the decades after the Great Depression. Nor was it individuals competing with one another for their personal chance to climb the economic latter. It was the values, vision, direct action, and political pressure of the labor movement- embodied in the song, Solidarity Forever– that pushed legislators to enact a new deal to address the needs of a nation that President Roosevelt called, “ill-housed, ill-clad, ill-nourished.”

Yet what force on earth is weaker than the feeble strength of one,
For the union makes us strong.

The political response to collective action in the 1930s was the Work Progress Administration (WPA) that put millions of unemployed American to work rebuilding the nation, the Social Security Act that ensured that retirees would not be destitute, and the National Labor Relations Act that secured workers’ right to organize and bargain collectively for humane working conditions, benefits and fair wages.

It was also the values and collective action of the civil rights movement in the 1950s and 1960s that enabled legislators to summon the moral and political courage to pass the Civil Rights Acts of 1964 and 1968, outlawing most forms of racial segregation and providing equal housing opportunities regardless of race, creed, or national origin. It was civil disobedience and mass action that compelled Congress to enact the Voting Rights Act of 1965 outlawing discrimination at the polling place. And it was also the continued strength of unions that led to Medicare and Medicaid, Food Stamps, Head Start and the Elementary and Secondary Education Act that were passed to directly mediate poverty.

The anthem of the civil rights movement was not, I will get ahead, but We Shall Overcome. The vehicle for “bending the moral arc of the universe toward justice” was not winning competitions with neighbors or winning a competition with fellow workers for merit bonuses, but rather walking hand-in-hand.

Maybe the most important historical lesson is that only mass collective action guided by a moral vision will pressure elected leaders to prioritize the interest of the many over the selfish demands of the few. Hence, the claims of the empowered to be leading the charge to reduce poverty through their version of education reform should be taken with a healthy grain of salt. An additional lesson is that while the seeds of past triumphs for greater equality and equity were planted through local action, it was only when community engagement culminated in national legislation or Supreme Court rulings that progress was fully realized and secured.

Unfortunately, those lessons have been obscured through decades of concerted propagandizing. Purposeful underfunding has reenergized the canard that government cannot be a force for general wellbeing. Once again, states rights, long the thinly veiled defense of segregation, is morally acceptable as political posturing. We need bigger, better hopes and dreams.

In contrast to the collective spirit of previous social and economic justice efforts, the core value of current education reform policies is individual advancement. In fact, its advocates seek to undermine collective action, democracy and community responsibility. They explicitly accept the notion of improvement for the few at the expense of the many. This value is reflected in idea that parents should secure their children’s future by competing for a slot in a charter school. It is evident in the idea that teachers will work harder and smarter when they compete to achieve better student scores than their colleagues in order to receive a financial reward.

None of the advances of the past eight decades were achieved without struggle. Each major advance for broad social justice and economic wellbeing met with fierce resistance- framed as an overreaching government imposing solutions in violation of individual rights. Similarly, advocacy for charter schools and vouchers is framed as the personal right to choose a school. Public schools are called government schools, as if that were a pejorative notion or accusingly attacked as a public education monopoly.

However, there is push back against the forces of inequity. Stirring of progressive political action abound in struggles for marriage equality and immigration rights, protests against school closings, and increasing acts of civil disobedience as parent opt-out of the misuse of standardized tests. Public disaffection with growing inequality surfaced briefly during the energizing but politically inchoate Occupy Wall Street demonstrations and in the diversity of protesters following a string of unpunished and egregiously unjustified police killings of young Black men.

However, these actions have yet to capture sufficient public attention and energy to fuel a mass movement with a unifying resonant message. We do not yet have a Solidarity Forever or We Shall Overcome that embodies the spirit of collective action for our time.

The movements of our recent past — unions, civil rights, anti-war, women’s rights, immigrant rights, and now environmental health and sustainable development, marriage equality, and education equity — have each sought to repair and strengthen threads that bind together the fabric of our nation. However, the accomplishments of each movement have been diminished because their fulfillment is not just about the threads. Substantial lasting progress is about the strength and tightness of the weave. We need to address the whole cloth.

We can be better than the audacity of small hopes. The next anthem for equity needs to include the unifying theme: We’re in this together for jobs, justice, and equitable education.

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If Instagram, Facebook And Snapchat Started Dating

You don’t want to go on a date with Instagram. Homegirl would be way too preoccupied with snapping photos of her food.

That’s a key takeaway in a playful new sketch by YouTuber Emma Blackery. In the clip, Blackery imagines what it would be like if websites — including Instagram, Facebook, Twitter, Snapchat and Tumblr — went on actual dates. Facebook can’t stop rambling on about people you may know, Snapchat has all of 10 seconds for you (typical) and Google+? Google+ is in severe need of some love.

Sounds about right.

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Mysterious, Stunning Crayfish Identified As Rare Indonesian Species

Some crayfish are just cray. And then there’s this one, which is the whole box of crayons.

Christian Lukhaup, a German scientist, has officially identified this stunning crustacean in a ZooKeys article. He told The Washington Post that he first spotted the crayfish in a photograph, and had noticed it turning up in pet shops, too.

New Scientist reports that the newly identified species Cherax (Astaconephrops) pulcher has been available for purchase since the 2000s, but nobody knew exactly where it came from, and traders kept quiet about their sources.

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Eventually, Lukhaup tracked the creature to the Hoa Creek on the island of New Guinea, Indonesia.

“I think it’s one of the most beautiful crayfish,” Lukhaup told The Washington Post. “It’s very striking.”

Unfortunately, as Lukhaup explains in his study, the crayfish is threatened by hungry locals and unscrupulous aquarium suppliers.

“Clearly, the continued collection of these crayfish for the trade is not a sustainable practice, and if the popularity of the species continues, a conservation management plan will have to be developed, including a captive breeding program,” he wrote.

Guys, this crayfish is brand new. If you need crustaceans for pets, stick to sea monkeys.

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Why The Affordable Care Act Should Cover Infertility

A current petition to Whitehouse.gov asks for infertility treatments to be covered by the Affordable Care Act. The fact that it isn’t already covered is concerning for a number of reasons.

First of all, infertility affects over 10 percent of the U.S. population and this number is exponentially increasing. In contrast, 28 percent of women use the birth control pill.

Not only is this form of contraception covered by the ACA and most insurance plans, a prescription for it doesn’t cost anything now for many individuals. The fact that preventing life is seen as a necessary health benefit while creating it isn’t disturbs me.

Infertility treatments are categorized by insurance like many types of plastic surgery — an elective procedure. To lump in trying to conceive with medical procedures like a nose job is insulting. Infertility is a disease, not just a preference.

People actually do mortgage their houses in order to try to have a baby. The cost of an average IUI ranges between $300 to $800, but it is only 10 percent effective each cycle for a woman who is under 35 and with normal sperm. Most women seek infertility treatments after 35, so the most effective treatment — IVF — is the most expensive.

The cost of one IVF cycle averages $12,000 but drugs cost around $5000. This is easily a year of tuition at a state school or a down payment on a house. However, one cycle only has less than a 30 percent chance of working for a woman under 40. So many women have to undergo an average of three cycles to achieve pregnancy.

Further, these estimates do not cover egg or embryo freezing, genetic testing and other procedures designed to optimize one’s chances of conceiving. In total, a couple could reasonably spend $100,000 in order to have a baby.

In comparison, the cost of adoption can be around the same amount. However, adoptive parents can receive state and federal tax credits to offset their costs. There is no such benefit available for people undergoing infertility treatments.

While there are some funding options for IVF and other infertility treatments in the form of grants, scholarships and prescription discounts, these are limited and very competitive. The majority of couples seeking funding rely on personal loans, credit cards and even mortgaging their houses to help cover the costs of infertility treatments.

There is progress that has been made in terms of insurance coverage. 15 states currently mandate some form of insurance coverage for diagnosis and treatment of infertility. But this might only mean some blood tests and ultrasounds or cheaper procedures like IUIs.

Luckily, my husband works in Illinois, which has a significant mandate. Up to four cycles of IVF and an unlimited number of frozen embryo transfers are covered. However, we have a very limited amount of prescription coverage for infertility drugs and the average out of pocket expense for drugs for one IVF cycle can be around $2500.

Lest anyone say that infertility treatments would be too economically burdensome to cover, I want to point out that almost half of Americans in their lifetime will be diagnosed and treated for some form of cancer. The cost of radiation, chemotherapy and surgery is much higher than infertility treatments. But no one blinks an eye that cancer should be covered by insurance –especially by the Affordable Care Act.

I believe infertility treatments aren’t already covered because it is considered a women’s disease. Women’s health has traditionally be under-covered — which is why the Affordable Care Act was so progressive, because it mandated coverage for wellness exams for women and contraception, most of the time for little or no out of pocket cost.

However, the idea that infertility is a women’s disease is false. Almost 50 percent of infertility cases are due to male factors such as sperm count and quality. Yet, there is much stigma surrounding male infertility.

In fact, when trying to find male celebrities who have been open about having male factor infertility, I could only find two: Gordon Ramsey and Tom Arnold. I believe that if more men spoke up, there would be a much bigger push for insurance coverage for infertility.

The fact is, insurance coverage for infertility isn’t simply a health issue — it is a political issue. Forcing people to mortgage their homes in order to treat a disease isn’t the way our insurance system works. And to push through the Affordable Care Act based on the idea that our health is a priority, if not a right, without considering this disease is an injustice.

I hope everyone considers signing the petition for the ACA to cover infertility treatments. You may not be someone who needs such type of treatment but in most likelihood you know someone who has or will. Vote with your signature for all diseases to receive the treatments they need.

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Melissa Miles McCarter has struggled with secondary infertility since her daughter died of SIDS in 2003. You can connect with her on Facebook or Twitter.

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Having the Courage to Live a Truly Audacious Life

Audacious, as defined in the dictionary, means “showing the willingness to take surprisingly bold risks”. I’d say that pretty much sums up my life these days.

But, I wasn’t always so bold, or willing, to do such audacious things. I played life “safe” for many years. I’m sure you know the drill:

  • Living daily life on autopilot
  • Answering “it’s fine” when indeed it’s not fine at all
  • Staying in a career you might “like”, at best
  • Saying “yes” to things you don’t want to do
  • And the biggest one of all…lying to yourself day in and day out…that one day, you will do “x”, or one day you will take that trip to “y”, or one day you will fulfill that dream of “z”

At the age of 28 (I am now 38.), I woke up to a failed marriage of seven years and $5.00 to my name. My ex-husband had a gambling problem that I wasn’t aware of, and he had not only sunk our marriage though deceit and lies, but our credit was sunk, we were behind in our mortgage and our bills, and the love was gone.

When I came out of shock and stitched all the pieces together to this terrifying puzzle, guess what the first words out of my mouth were? Yep, you guessed it, “It’s fine, honey. We will make it work.” And I tried to do just that. And the following year, we were in the same sinking ship again. That was the year that I decided I was going to start living life on my own terms, no matter how hard the transition was going to be, and no matter who I had to “release” from my life to do so.

I packed my bags, sold my house, regrouped for a few months by staying with my older sister, then rented an apartment and began building a new life. This life was much different:

  • I embraced spontaneity more in my day to day happenings.
  • I erased “It’s fine.” from my vocabulary. That standard response generally means it’s not fine at all.
  • I started saying “no” to opportunities and people who didn’t light me up with passion and gusto.
  • And I made a monthly “bucket list” of foods, classes, and trips I wanted to experience.

By now, I was 30, living in Charlotte, North Carolina, and I was back in the dating scene! I met a wonderful guy from Brooklyn, named Michael, and we began a long-distance relationship. Every six weeks or so, we would fly back and forth between LaGuardia and Charlotte. I got to experience the big city life of New York City, which was quite a drastic change from the 4,000 person town I was raised in! I tried new foods (Falafel is my all-time favorite!), listened to all kinds of new music, attend parties that started at midnight, and really fell in love with learning about cultures and traveling to foreign parts of the world.

Michael and I married, and I once again packed my bags and headed to Brooklyn, where I reside today. I was a public school teacher for 15 years, and when I knew that it was time for a change, because everything in my career wasn’t “fine,” I ditched my teaching job in four months flat and opened my business, The Writing Whisperer. That was two years ago, and I haven’t looked back.

I am living what I often refer to as a dream life. I love my business and the work I am doing. I have complete freedom over my days and evenings. I am packing my bags this year for the Bahamas, Bali, and London — all of which I will travel to in a four-month timespan. I am training for the November New York City Marathon, and I am making friendships with people around the world.

I often pinch myself to make sure my audacious life is really true. I make decisions rooted in love and compassion, and I live every single day with purpose and zeal. Above all, I remain grateful and count my blessings each night.

Do you dream of loving every single moment of every single day? Is it time to make some changes, so that you, too, can live an audacious life? In my memoir, the final words read, “head west — I’ll be waiting for you.” Reset your compass and join me — you won’t be disappointed.

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